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Showing: 15 of 153 stories

Céline and Suzanne: Navigating Alagille Syndrome
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Céline and Suzanne: Navigating Alagille Syndrome

At just nine years old, Suzanne is a bright, creative young girl who loves dancing, drawing, exploring the woods, and watching birds. Despite living with Alagille syndrome (ALGS), a rare genetic condition, she embraces life with enthusiasm and curiosity.


Ipsen 2025 Annual General Meeting
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Ipsen 2025 Annual General Meeting

A replay with complete presentation and Q&A session will be made available soon after the Annual General Meeting.


Q1 2025 sales update
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Q1 2025 sales update

The financial results for the Full Year 2024 will be published on February 13, 2025 at 7H00 CET and a conference call will take place at 13H00 CET.


Living with Rare Liver Diseases: Unique challenges, Shared Experiences 
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Living with Rare Liver Diseases: Unique challenges, Shared Experiences 

Cholestatic liver diseases are a rare but significant group of conditions that impact both children and adults. Three such conditions—Primary Biliary Cholangitis (PBC), Progressive Familial Intrahepatic Cholestasis (PFIC), and Alagille Syndrome (ALGS)—share commonalities yet are unique in their caus


Scientific Journey from Coal to Diamond: Myths and Misperceptions in Rare Disease Innovation 
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Scientific Journey from Coal to Diamond: Myths and Misperceptions in Rare Disease Innovation 

In storytelling, you might hear of a superhero who squeezes coal with immense strength and heat, instantly creating a flawless diamond. While fiction, it’s true that diamonds are rare and formed under precise conditions over millions of years. For me, this analogy resonates deeply with the developme