Collaborating with the neuroscience patient community | Ipsen Global

Together for Neuroscience

We start a dialogue with the patient community as early as possible when developing new medicines for neurological conditions.

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Listening to people with neurological conditions

We involve people living with neurological conditions at every stage of the medicine development process, starting with early discovery research in our laboratories, to enable us to deliver better medicines and services.

One example of this is our collaboration with Dystonia Europe on the first ever cervical dystonia patient experience map, which uncovered the unmet needs of people living with the condition and patients’ expectations for tailored support services and programs, helping us to know where to focus our efforts.

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It is crucial to involve patient experts from the outset when developing new medicines within neuroscience, where Ipsen has established a strong R&D legacy – to fully understand the value of treatment that meaningful for patients. We can then concentrate our efforts to try to make this target value profile a reality

Neurosciences Global Patient Affairs Director

Our work with the neuroscience patient community

We work together with the neuroscience patient community around the world on a range of different projects, across all stages from research and development, clinical study information, and patient support programs.

PARTNERSHIPS

PARTNERSHIPS

Ipsen has worked together with many Global and European communities, supporting people affected by neurological conditions.

Testimonials from Patient Organizations

‘By working together, we are both dedicated to achieve our common goals: patients in the centre of our activities and to improve quality of life for patients and their carers.’

Experiences of living with neurological conditions

Although living with a neurological condition might feel daunting at times, you are certainly not alone. Behind every person, there is a story, and we believe that you tell it best.

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Collaborate with us

We are always looking to collaborate with patients and patient organizations to improve the lives of people living with neurological conditions. Find out how you can work with us on a potential shared project.

Top patient stories in neuroscience

29 August 2023 2 mins read

Making clinical trials relevant to stroke survivors

At Ipsen, we endeavor for all our clinical trials to be reflective of the real world, and this requires the participation of a cross-section of…

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Gathering insights to improve clinical trials direction study patient advisory board

At Ipsen, we strive to improve the experiences of those participating in our clinical trials and do this by capturing insights from people living with…

29 August 2023 2 mins read

Unchartered territory: Mapping the cervical dystonia patient experience  

We collaborated with Dystonia Europe to help uncover the unmet needs of people living with cervical dystonia – a rare, underdiagnosed neurological movement disorder that…

11 October 2022 3 mins read

The Ixcellence Network®: celebrating 10 years of progress in improving the standard of care for patients living with debilitating neurological disorders

Continuing medical education is vital to maintaining the quality of clinical practice, which in turn can improve patient outcomes. As a pioneer in botulinum neurotoxin…

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