Putting patients first |Ipsen Patient Care & Support

Patients

At Ipsen, patients motivate every decision we make.

WORKING WITH PATIENTS, FOR PATIENTS

Ipsen works with patients, their families, and more than 250 patient organizations around the world at a global, regional, and national level. Our key priorities are generating data and sharing experiences. We want to guarantee that patients are truly given a seat at the table when it comes to their care and the developments that Ipsen is making. We believe this kind of close collaboration and inclusion is essential to ensure we chart the right course.  Our goal is to understand and respond to patients’ needs, helping them and their caregivers at different points throughout their experiences. At Ipsen, we believe in working together with patients, for patients.

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Patients drive our science in Oncology, Neuroscience and Rare Disease. Being in touch with what matters to patients and their families helps us understand their needs and work together to bring meaningful improvements to their lives.

Sandra Silvestri, M.D., Ph.D.

EVP, Chief Medical Officer, Head of Global Medical Affairs, Patient Safety and Patient Affairs

OUR WORK WITH PATIENT ORGANIZATIONS

It all starts with listening. At Ipsen, we enter into dialogue with the patient community as early as possible when developing new medicines. Our focus is on long-term strategic engagement and partnerships with patient organizations.

Top Patient Stories

Browse all patient stories

04 October 2024 2 mins read

Looking after a loved one with Progressive Familial Intrahepatic Cholestasis: Francesca’s Story

A few months after Eva Luna was born, her mother Francesca realised something wasn’t quite right. Within the span of a few days, their world was turned upside down when her daughter was diagnosed with a rare liver disease, known as Progressive Familial Intrahepatic Cholestasis (PFIC). Yet despite th

12 September 2024 4 mins read

Partnering for Progress: The Importance of Collaboration in Primary Biliary Cholangitis (PBC) Awareness  

September is a month dedicated to raising awareness about Primary Biliary Cholangitis, I find myself reflecting on the challenges faced by those living with rare cholestatic disease. PBC Awareness Day on September 10th is not just a date on the calendar; it’s a reminder that understanding and suppor

10 September 2024 3 mins read

Living with Neuroendocrine Cancer: Stephen’s story

It was only at 46 years old that Stephen was diagnosed with neuroendocrine cancer. Lovingly married to his wife and father to two sons freshly out of high school, in the prime of life with decades ahead of him, Stephen was shocked and confused by his diagnosis. His doctor told him he had 10 to 15 ye

03 September 2024 2 mins read

Provide Better Care: PBC Awareness Day 2024 

“We’re often asked, what is the PBC journey? And the challenge is that, well, the PBC journey doesn’t exist. There are thousands and thousands of patients around the world, and each of them have an individual journey.” 

24 July 2024 2 mins read

How physicians can help empower people living with Primary Biliary Cholangitis 

During the European Association for the Study of the Liver (EASL) congress, leading liver experts, Dr Mark Swain, Dr Emma Culver, and Dr Marco Carbone, sat down to discuss the effective management of primary biliary cholangitis (PBC)

05 June 2024 2 mins read

The importance of personalized care to empower patients with PBC 

At the European Association for the Study of the Liver (EASL) congress, leading liver experts discuss the importance of proactive, personalized care and shared decision-making during consultations. A personalized care approach begins by listening to the patient’s feelings and needs, which can result

29 May 2024 1 mins read

Together, we can improve the lives of people living with kidney cancer

Together for Kidney Cancer is a global disease awareness initiative funded by Ipsen aiming to raise awareness of the reality of people’s experiences living with kidney cancer and the importance of shared decision making to inform better care outcomes.

20 May 2024 4 mins read

Exploring life and parenthood with Primary Biliary Cholangitis 

Sandra Silvestri, Executive Vice President & Chief Medical Officer at Ipsen, reflects on the challenges women living with primary biliary cholangitis (PBC) face and why we have big dreams of a better future for PBC.

14 May 2024 2 mins read

Progressive Familial Intrahepatic Cholestasis (PFIC): Liver experts discuss early diagnosis and management 

Progressive Familial Intrahepatic Cholestasis (PFIC) is a rare liver disease that can pose significant challenges, particularly in young children1, but the good news is that there are growing opportunities to manage the disease, slow its progression and improve outcomes.  

10 April 2024 3 mins read

Going on a PBC journey together

At seventy-one-years young, Gill, a devoted mother and grandmother from Nottinghamshire, loves spending time with her grandchildren and gardening. She also has a real passion for her volunteering work, to raise awareness of the ‘invisible, and isolating disease she has…

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Making clinical trials accessible and understandable

We are committed to ensuring that all our published research is freely available to everyone. To make this happen, we work closely with the patient community to provide summaries of key clinical studies sponsored by Ipsen in easy-to-understand language, so they are not just available, but accessible to all.

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Ipsen Clinical Trials

Ipsen conducts first-in-the-world clinical trials to take science forward together. Our global network of healthcare professionals helps us test new treatments and ensure their efficacy and safety by conducting clinical trials. Our aim is to create new therapies and improve upon existing ones to improve patients’ lives and health outcomes.

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Our approach to responsibility

Ipsen unites all our employees behind our global commitment to doing business responsibly through Generation Ipsen – For Positive Change. This fully integrated approach is built on four pillars: Environment, Patients, People and Governance. Generation Ipsen is designed to ensure we meet patients’ needs while working in ways that are ethical, responsible and community-minded.

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Request medical information / report adverse event or product complaint

To request medical information on Ipsen’s products, report an adverse event or report a complaint, please visit: www.ipsenmedicalinformation.com or email us at globalmedinfo@ipsen.com

Adverse event reactions can also be reported directly to Ipsen’s local safety team using the contact details provided in the contact us pages