Putting patients first
WORKING WITH PATIENTS, FOR PATIENTS
Ipsen works with patients, their families, and more than 250 patient organizations around the world at a global, regional, and national level. Our key priorities are generating data and sharing experiences. We want to guarantee that patients are truly given a seat at the table when it comes to their care and the developments that Ipsen is making. We believe this kind of close collaboration and inclusion is essential to ensure we chart the right course. Our goal is to understand and respond to patients’ needs, helping them and their caregivers at different points throughout their experiences. At Ipsen, we believe in working together with patients, for patients.
Patients drive our science in Oncology, Neuroscience and Rare Disease. Being in touch with what matters to patients and their families helps us understand their needs and work together to bring meaningful improvements to their lives.
We are committed to ensuring that people living with health conditions are heard, integrating their ideas into our transformative care methods and services. We all have a part to play in this.
OUR WORK WITH PATIENT ORGANIZATIONS
It all starts with listening. At Ipsen, we enter into dialogue with the patient community as early as possible when developing new medicines. Our focus is on long-term strategic engagement and partnerships with patient organizations.
Making a difference
Ipsen is committed to working closely and inclusively with the patient community to impact medical care and patient outcomes in our focus fields of Oncology, Rare Disease and Neuroscience.
How physicians can help empower people living with Primary Biliary Cholangitis
During the European Association for the Study of the Liver (EASL) congress, leading liver experts, Dr Mark Swain, Dr Emma Culver, and Dr Marco Carbone, sat down to discuss the effective management of primary biliary cholangitis (PBC)
The importance of personalized care to empower patients with PBC
At the European Association for the Study of the Liver (EASL) congress, leading liver experts discuss the importance of proactive, personalized care and shared decision-making during consultations. A personalized care approach begins by listening to the patient’s feelings and needs, which can result
Together, we can improve the lives of people living with kidney cancer
Together for Kidney Cancer is a global disease awareness initiative funded by Ipsen aiming to raise awareness of the reality of people’s experiences living with kidney cancer and the importance of shared decision making to inform better care outcomes.
Exploring life and parenthood with Primary Biliary Cholangitis
Sandra Silvestri, Executive Vice President & Chief Medical Officer at Ipsen, reflects on the challenges women living with primary biliary cholangitis (PBC) face and why we have big dreams of a better future for PBC.
Progressive Familial Intrahepatic Cholestasis (PFIC): Liver experts discuss early diagnosis and management
Progressive Familial Intrahepatic Cholestasis (PFIC) is a rare liver disease that can pose significant challenges, particularly in young children1, but the good news is that there are growing opportunities to manage the disease, slow its progression and improve outcomes.
Going on a PBC journey together
At seventy-one-years young, Gill, a devoted mother and grandmother from Nottinghamshire, loves spending time with her grandchildren and gardening. She also has a real passion for her volunteering work, to raise awareness of the ‘invisible, and isolating disease she has…
Life with Primary Biliary Cholangitis: Sabrina’s Story
Sabrina is a lover of nature, mother and grandmother, whose outlook on life is to make every moment count. Sabrina lives with primary biliary cholangitis (PBC), which means every day is different depending on the severity of her symptoms, but…
Working together to create positive change in rare diseases
Every four years, Rare Disease Day lands on the ‘rarest’ day of the year, 29th February. Due to leap years, this day is normally celebrated on 28th February, but this year means it is taking place on its intended day….
The not-so-rare challenges of rare liver diseases
Hearing a rare liver disease diagnosis can be one of the most emotionally turbulent moments in a person’s life.1 For the parents of the estimated 1 in 50,000 – 100,000 newborns impacted by rare liver diseases, this moment is all…
Caring for a Loved One with Metastatic Pancreatic Cancer: Nora’s Story
Nora and her husband, Hector, met 39 years ago, got married shortly after, and have been inseparable ever since. In 2021, Hector was diagnosed with metastatic pancreatic cancer, which threw their entire family into navigating a very difficult diagnosis. Nora…
Making clinical trials accessible and understandable
We are committed to ensuring that all our published research is freely available to everyone. To make this happen, we work closely with the patient community to provide summaries of key clinical studies sponsored by Ipsen in easy-to-understand language, so they are not just available, but accessible to all.
Ipsen Clinical Trials
Ipsen conducts first-in-the-world clinical trials to take science forward together. Our global network of healthcare professionals helps us test new treatments and ensure their efficacy and safety by conducting clinical trials. Our aim is to create new therapies and improve upon existing ones to improve patients’ lives and health outcomes.
Our approach to responsibility
Ipsen unites all our employees behind our global commitment to doing business responsibly through Generation Ipsen – For Positive Change. This fully integrated approach is built on four pillars: Environment, Patients, People and Governance. Generation Ipsen is designed to ensure we meet patients’ needs while working in ways that are ethical, responsible and community-minded.
Request medical information / report adverse event or product complaint
To request medical information on Ipsen’s products, report an adverse event or report a complaint, please visit: www.ipsenmedicalinformation.com or email us at globalmedinfo@ipsen.com
Adverse event reactions can also be reported directly to Ipsen’s local safety team using the contact details provided in the contact us pages