At Ipsen, patients motivate every decision we make.


Ipsen works with patients, their families, and more than 250 patient organizations around the world at a global, regional, and national level. Our key priorities are generating data and sharing experiences. We want to guarantee that patients are truly given a seat at the table when it comes to their care and the developments that Ipsen is making. We believe this kind of close collaboration and inclusion is essential to ensure we chart the right course.  Our goal is to understand and respond to patients’ needs, helping them and their caregivers at different points throughout their experiences. At Ipsen, we believe in working together with patients, for patients.


It all starts with listening. At Ipsen, we enter into dialogue with the patient community as early as possible when developing new medicines. Our focus is on long-term strategic engagement and partnerships with patient organizations.

Top Patient Stories

Browse all patient stories

05 June 2024 2 mins read

The importance of personalized care to empower patients with PBC 

At the European Association for the Study of the Liver (EASL) congress, leading liver experts discuss the importance of proactive, personalized care and shared decision-making during consultations. A personalized care approach begins by listening to the patient’s feelings and needs, which can result

29 May 2024 1 mins read

Together, we can improve the lives of people living with kidney cancer

Together for Kidney Cancer is a global disease awareness initiative funded by Ipsen aiming to raise awareness of the reality of people’s experiences living with kidney cancer and the importance of shared decision making to inform better care outcomes.

20 May 2024 4 mins read

Exploring life and parenthood with Primary Biliary Cholangitis 

Sandra Silvestri, Executive Vice President & Chief Medical Officer at Ipsen, reflects on the challenges women living with primary biliary cholangitis (PBC) face and why we have big dreams of a better future for PBC.

14 May 2024 2 mins read

Progressive Familial Intrahepatic Cholestasis (PFIC): Liver experts discuss early diagnosis and management 

Progressive Familial Intrahepatic Cholestasis (PFIC) is a rare liver disease that can pose significant challenges, particularly in young children1, but the good news is that there are growing opportunities to manage the disease, slow its progression and improve outcomes.  

10 April 2024 3 mins read

Going on a PBC journey together

At seventy-one-years young, Gill, a devoted mother and grandmother from Nottinghamshire, loves spending time with her grandchildren and gardening. She also has a real passion for her volunteering work, to raise awareness of the ‘invisible, and isolating disease she has…

03 April 2024 2 mins read

Life with Primary Biliary Cholangitis: Sabrina’s Story

Sabrina is a lover of nature, mother and grandmother, whose outlook on life is to make every moment count. Sabrina lives with primary biliary cholangitis (PBC), which means every day is different depending on the severity of her symptoms, but…

29 February 2024 2 mins read

Working together to create positive change in rare diseases

Every four years, Rare Disease Day lands on the ‘rarest’ day of the year, 29th February. Due to leap years, this day is normally celebrated on 28th February, but this year means it is taking place on its intended day….

12 February 2024 2 mins read

The not-so-rare challenges of rare liver diseases

Hearing a rare liver disease diagnosis can be one of the most emotionally turbulent moments in a person’s life.1 For the parents of the estimated 1 in 50,000 – 100,000 newborns impacted by rare liver diseases, this moment is all…

02 February 2024 3 mins read

Caring for a Loved One with Metastatic Pancreatic Cancer: Nora’s Story

Nora and her husband, Hector, met 39 years ago, got married shortly after, and have been inseparable ever since. In 2021, Hector was diagnosed with metastatic pancreatic cancer, which threw their entire family into navigating a very difficult diagnosis. Nora…

31 January 2024 1 mins read

Continuously improving how we engage with patient communities 2023 Ipsen patient organization engagement satisfaction survey results  

In 2023 Ipsen launched its third global patient organization engagement survey, featuring the perspectives of 85 patient organizations (POs) globally. These findings will be used to help Ipsen deliver on what matters most to patients and caregivers. For the third…

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Making clinical trials accessible and understandable

We are committed to ensuring that all our published research is freely available to everyone. To make this happen, we work closely with the patient community to provide summaries of key clinical studies sponsored by Ipsen in easy-to-understand language, so they are not just available, but accessible to all.

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Ipsen Clinical Trials

Ipsen conducts first-in-the-world clinical trials to take science forward together. Our global network of healthcare professionals helps us test new treatments and ensure their efficacy and safety by conducting clinical trials. Our aim is to create new therapies and improve upon existing ones to improve patients’ lives and health outcomes.

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Our approach to responsibility

Ipsen unites all our employees behind our global commitment to doing business responsibly through Generation Ipsen – For Positive Change. This fully integrated approach is built on four pillars: Environment, Patients, People and Governance. Generation Ipsen is designed to ensure we meet patients’ needs while working in ways that are ethical, responsible and community-minded.

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Request medical information / report adverse event or product complaint

To request medical information on Ipsen’s products, report an adverse event or report a complaint, please visit: or email us at

Adverse event reactions can also be reported directly to Ipsen’s local safety team using the contact details provided in the contact us pages