WORKING WITH PATIENTS, FOR PATIENTS
Ipsen works with patients, their families, and more than 250 patient organizations around the world at a global, regional, and national level. Our key priorities are generating data and sharing experiences. We want to guarantee that patients are truly given a seat at the table when it comes to their care and the developments that Ipsen is making. We believe this kind of close collaboration and inclusion is essential to ensure we chart the right course. Our goal is to understand and respond to patients’ needs, helping them and their caregivers at different points throughout their experiences. At Ipsen, we believe in working together with patients, for patients.
Patients drive our science in Oncology, Neuroscience and Rare Disease. Being in touch with what matters to patients and their families helps us understand their needs and work together to bring meaningful improvements to their lives.
We are committed to ensuring that people living with health conditions are heard, integrating their ideas into our transformative care methods and services. We all have a part to play in this.
OUR WORK WITH PATIENT ORGANIZATIONS
It all starts with listening. At Ipsen, we enter into dialogue with the patient community as early as possible when developing new medicines. Our focus is on long-term strategic engagement and partnerships with patient organizations.
Making a difference
Ipsen is committed to working closely and inclusively with the patient community to impact medical care and patient outcomes in our focus fields of Oncology, Rare Disease and Neuroscience.
Top patient stories
Browse all patient stories
The not-so-rare challenges of rare liver diseases
Hearing a rare liver disease diagnosis can be one of the most emotionally turbulent moments in a person’s life.1 For the parents of the estimated 1 in 50,000 – 100,000 newborns impacted by rare liver diseases, this moment is all…
Caring for a Loved One with Metastatic Pancreatic Cancer: Nora’s Story
Nora and her husband, Hector, met 39 years ago, got married shortly after, and have been inseparable ever since. In 2021, Hector was diagnosed with metastatic pancreatic cancer, which threw their entire family into navigating a very difficult diagnosis. Nora…
Continuously improving how we engage with patient communities 2023 Ipsen patient organization engagement satisfaction survey results
In 2023 Ipsen launched its third global patient organization engagement survey, featuring the perspectives of 85 patient organizations (POs) globally. These findings will be used to help Ipsen deliver on what matters most to patients and caregivers. For the third…
Uniting for patients: Ipsen’s first patient centricity week – Care 2 Know More
At Ipsen, improving patients’ lives drives us. We work together with patients, for patients. However, we know that understanding how to be more patient centric can be challenging, especially if you don’t work with patients in your day-to-day role.
‘Get men talking’: breaking the silence around prostate cancer
Tim Batchelor, Ipsen’s Head of Global Commercial Learning & Development, candidly shares his experience of living with prostate cancer. At the age of 48, Tim was confronted with a prostate cancer diagnosis. His early detection proved pivotal, leading to successful…
Primary Biliary Cholangitis: The Power of Patient Reported Outcomes
“The important thing with PBC is to take a holistic view of it, and think ‘What are the problems we are trying to solve? The first is the risk of progression to cirrhosis, and the other is symptoms and quality…
The Liver Meeting 2023: Innovating for people living with rare liver diseases
Jennifer Schranz (Ipsen’s Global Head of Rare Diseases) attended The Liver Meeting from November 10-14, sharing key insights from her time onsite and explaining why scientific congresses are vital in helping advance innovation for patients.
Ipsen’s mission to accelerate innovation in oncology
The outputs from the European Society of Medical Oncology (ESMO) Congress this year encompassed several important new data announcements, highlighting key advances in the development of therapies for people living with cancer. However, cancer remains a formidable global health challenge,…
Ipsen stands together to make innovation in rare disease happen
Developing innovation for people living with rare diseases is uniquely challenging. It requires all the different pieces of the puzzle– clinical viability, economic viability and the policy environment— to come together before innovation can reach patients.
Innovating for people living with primary biliary cholangitis
At Ipsen we have been focused on developing new and innovative treatments for rare diseases for many years in endocrinology, rare bone disease and more recently in rare liver disease. This focus continues to be a core part of our…
Making clinical trials accessible and understandable
We are committed to ensuring that all our published research is freely available to everyone. To make this happen, we work closely with the patient community to provide summaries of key clinical studies sponsored by Ipsen in easy-to-understand language, so they are not just available, but accessible to all.
Ipsen Clinical Trials
Ipsen conducts first-in-the-world clinical trials to take science forward together. Our global network of healthcare professionals helps us test new treatments and ensure their efficacy and safety by conducting clinical trials. Our aim is to create new therapies and improve upon existing ones to improve patients’ lives and health outcomes.
Our approach to responsibility
Ipsen unites all our employees behind our global commitment to doing business responsibly through Generation Ipsen – For Positive Change. This fully integrated approach is built on four pillars: Environment, Patients, People and Governance. Generation Ipsen is designed to ensure we meet patients’ needs while working in ways that are ethical, responsible and community-minded.
Request medical information / report adverse event or product complaint
Adverse event reactions can also be reported directly to Ipsen’s local safety team using the contact details provided in the contact us pages