Meet Jo, living with PBC
Jo’s journey to diagnosis began about 10 years ago, when she contacted her GP feeling tired and run down, but it wasn’t until 4 years ago following some routine blood tests and a liver biopsy, that she received a diagnosis. Support groups, like the PBC Foundation, have been a gamechanger for Jo, providing support, education and a like-minded community.
For years, Jo has felt like fatigue has been an ‘unwelcome guest’, stealing her evenings and limiting her career. Now, she is putting her word on paper to make the invisible visible, reclaiming the agency that fatigue once stole. By writing this letter, she is finding the strength to advocate for her health, sharing her story to empower everyone living with PBC.
The impact of fatigue: Jo’s Story
Fatigue is more than just tiredness. From her social life to her work life, Jo describes how her fatigue symptoms have impacted both.
Lifestyle adjustments to manage fatigue: Jo’s Story
From diary organization to diet management, Jo explains her individual lifestyle adjustments to manage fatigue.
Knowing liver function: Jo’s Story
PBC affects the bile ducts that run through your liver. Liver blood tests that show high levels of ALP (alkaline phosphatase) are a marker of PBC disease progression. Jo explains why understanding what impacts your liver function is an important part of taking charge of your PBC journey.
Finding a community: Jo’s Story
Jo describes the importance of community in PBC management.
Advice to her past self: Jo’s Story
Jo shares the PBC advice she would give to her past self.
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