07 July 2023 – 1 mins read
Primary Biliary Cholangitis (PBC): Looking Beyond the Liver
“Symptom burden is the main issue for the patient.”– Professor Andreas Kremer, Hepatologist of the University of Zurich Hospital
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Showing: 1 – 10 of 66 stories
29 August 2023 – 2 mins read
Tackling taboos in prostate cancer: Sex in the doctor’s office podcast
People living with prostate cancer in the Netherlands told us they needed more support around intimacy and sexual health due to the impact that their treatment can have on these. A LinkedIn poll also identified that 95% of caregivers of…
29 August 2023 – 3 mins read
Empowering people with RCC to take more active roles in their treatment and care decisions
Despite evidence suggesting that involving people living with renal cell carcinoma (RCC) in treatment decisions can increase their overall survival and quality of life, there can be challenges to routinely embedding the Shared Decision Making (SDM) approach into practice.
25 August 2023 – 2 mins read
Why we must work together to improve life after stroke
At Ipsen, we are committed to helping people who are navigating the challenges of living with debilitating neurological conditions. This is why today, as we mark the start of the European Congress for Neurorehabilitation (ECNR) in Lyon, I want to…
27 July 2023 – 1 mins read
A strong first half of 2023
2023 is off to a strong start. Hear how CEO David Loew would describe the last six months at Ipsen.
20 July 2023 – 1 mins read
Winner of Ipsen’s golden ticket announced as newest resident of Biolabs Hôtel Dieu
We are pleased to announce that Hemerion has been awarded Ipsen’s golden ticket 2023, receiving a year’s free lab space at the brand new, cutting-edge facility in the heart of Paris, France, close to Notre-Dame, at Paris Hôpital Hotel Dieu, AP-HP.
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PBC Awareness Month: The power of patient voices
As anyone living with Primary Biliary Cholangitis (PBC) – a rare and progressive autoimmune liver disease1 – knows, the disease can have a significant impact on a person’s day to day life and relationships.2
Mapping valuable insights from the FOP patient community in the UK and Spain
FOP is an ultra-rare genetic disorder where extra bone formation takes place in soft tissues, including muscles, tendons and ligaments, causing irreversible and progressive loss of mobility and leading to severe disability. To better understand the struggles that people living…
Putting yourself in the shoes of someone with an ultra-rare condition: the first FOP immersive experience
You can never truly understand what it’s like to live with an ultra-rare condition unless you’ve experienced it for yourself. With this in mind, we recently embarked on a project to help healthcare professionals experience what it’s like to live…
Understanding the Person Behind the Chart – Living with Primary Biliary Cholangitis
Primary biliary cholangitis (PBC) is a chronic autoimmune disease that affects liver function and can have debilitating symptoms for people living with the condition, including unrelenting itch, fatigue, pain and dry eyes and mouth. In addition, people who live with…
Learning the impacts of FOP from patients and their families – The Burden of Illness study
Fibrodysplasia ossificans progressiva (FOP) is an ultra-rare genetic disorder where extra bone formation takes place in soft tissues, including muscles, tendons and ligaments, causing irreversible and progressive loss of mobility, leading to severe disability. While the impact of the disease…
Making clinical trials relevant to stroke survivors
At Ipsen, we endeavor for all our clinical trials to be reflective of the real world, and this requires the participation of a cross-section of people living with a particular condition. However, for some stroke survivors with post-stroke spasticity –…
Gathering insights to improve clinical trials – DIRECTION study patient advisory board
At Ipsen, we strive to improve the experiences of those participating in our clinical trials and do this by capturing insights from people living with the conditions we are investigating to help us to improve how we run our studies.
Unchartered territory: Mapping the cervical dystonia patient experience
We collaborated with Dystonia Europe to help uncover the unmet needs of people living with cervical dystonia – a rare, underdiagnosed neurological movement disorder that primarily affects the muscles in the neck. This can cause the head to turn to…
Co-creating recipe guides with the kidney cancer patient community to tackle undernutrition during treatment
In France, we partnered with patient organization Association pour La Recherche sur les Tumeurs du Rein (A.R.T.u.R) and experts to help people living with kidney cancer overcome undernutrition.
Uniting the neuroendocrine tumor (NET) community in Spain: Podcast series
We worked together with the Spanish patient organization NET España and local scientific society Grupo Español en Tumores Neuroendocrinos y Endocrinos (GETNE) on a podcast series to raise awareness of neuroendocrine tumors (NETs), a group of uncommon tumors that develop…