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Showing: 1 – 10 of 66 stories

Tackling taboos in prostate cancer: Sex in the doctor’s office podcast
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Tackling taboos in prostate cancer: Sex in the doctor’s office podcast

People living with prostate cancer in the Netherlands told us they needed more support around intimacy and sexual health due to the impact that their treatment can have on these. A LinkedIn poll also identified that 95% of caregivers of…


Empowering people with RCC to take more active roles in their treatment and care decisions
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Empowering people with RCC to take more active roles in their treatment and care decisions

Despite evidence suggesting that involving people living with renal cell carcinoma (RCC) in treatment decisions can increase their overall survival and quality of life, there can be challenges to routinely embedding the Shared Decision Making (SDM) approach into practice.


Why we must work together to improve life after stroke
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Why we must work together to improve life after stroke

At Ipsen, we are committed to helping people who are navigating the challenges of living with debilitating neurological conditions. This is why today, as we mark the start of the European Congress for Neurorehabilitation (ECNR) in Lyon, I want to…


A strong first half of 2023
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A strong first half of 2023

2023 is off to a strong start. Hear how CEO David Loew would describe the last six months at Ipsen.


Winner of Ipsen’s golden ticket announced as newest resident of Biolabs Hôtel Dieu 
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Winner of Ipsen’s golden ticket announced as newest resident of Biolabs Hôtel Dieu 

We are pleased to announce that Hemerion has been awarded Ipsen’s golden ticket 2023, receiving a year’s free lab space at the brand new, cutting-edge facility in the heart of Paris, France, close to Notre-Dame, at Paris Hôpital Hotel Dieu, AP-HP. 


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01 September 2023 4 mins read
PBC Awareness Month: The power of patient voices  

As anyone living with Primary Biliary Cholangitis (PBC) – a rare and progressive autoimmune liver disease1 – knows, the disease can have a significant impact on a person’s day to day life and relationships.2 

29 August 2023 1 mins read
Mapping valuable insights from the FOP patient community in the UK and Spain

FOP is an ultra-rare genetic disorder where extra bone formation takes place in soft tissues, including muscles, tendons and ligaments, causing irreversible and progressive loss of mobility and leading to severe disability. To better understand the struggles that people living…

29 August 2023 2 mins read
Putting yourself in the shoes of someone with an ultra-rare condition: the first FOP immersive experience

You can never truly understand what it’s like to live with an ultra-rare condition unless you’ve experienced it for yourself. With this in mind, we recently embarked on a project to help healthcare professionals experience what it’s like to live…

29 August 2023 2 mins read
Understanding the Person Behind the Chart – Living with Primary Biliary Cholangitis

Primary biliary cholangitis (PBC) is a chronic autoimmune disease that affects liver function and can have debilitating symptoms for people living with the condition, including unrelenting itch, fatigue, pain and dry eyes and mouth. In addition, people who live with…

29 August 2023 2 mins read
Learning the impacts of FOP from patients and their families – The Burden of Illness study

Fibrodysplasia ossificans progressiva (FOP) is an ultra-rare genetic disorder where extra bone formation takes place in soft tissues, including muscles, tendons and ligaments, causing irreversible and progressive loss of mobility, leading to severe disability. While the impact of the disease…

29 August 2023 2 mins read
Making clinical trials relevant to stroke survivors

At Ipsen, we endeavor for all our clinical trials to be reflective of the real world, and this requires the participation of a cross-section of people living with a particular condition. However, for some stroke survivors with post-stroke spasticity –…

29 August 2023 1 mins read
Gathering insights to improve clinical trials – DIRECTION study patient advisory board 

At Ipsen, we strive to improve the experiences of those participating in our clinical trials and do this by capturing insights from people living with the conditions we are investigating to help us to improve how we run our studies.  

29 August 2023 2 mins read
Unchartered territory: Mapping the cervical dystonia patient experience  

We collaborated with Dystonia Europe to help uncover the unmet needs of people living with cervical dystonia – a rare, underdiagnosed neurological movement disorder that primarily affects the muscles in the neck. This can cause the head to turn to…

29 August 2023 2 mins read
Co-creating recipe guides with the kidney cancer patient community to tackle undernutrition during treatment

In France, we partnered with patient organization Association pour La Recherche sur les Tumeurs du Rein (A.R.T.u.R) and experts to help people living with kidney cancer overcome undernutrition.

29 August 2023 1 mins read
Uniting the neuroendocrine tumor (NET) community in Spain: Podcast series

We worked together with the Spanish patient organization NET España and local scientific society Grupo Español en Tumores Neuroendocrinos y Endocrinos (GETNE) on a podcast series to raise awareness of neuroendocrine tumors (NETs), a group of uncommon tumors that develop…