Adult PFIC: Why Some People Spend Years Searching for Answers 

Ivana, living with PFIC. . . What is adult PFIC?  PFIC is a group of rare inherited liver conditions that

PFIC Colors: Making Sense of PFIC with the PFIC Network

Progressive Familial Intrahepatic Cholestasis (PFIC) can be a complex condition. Finding trusted information about PFIC shouldn’t be. PFIC Colors is

Driving Progress in Rare Liver Disease: Ipsen at EASL Congress 2026

Listening isn’t a slogan, it’s the foundation of rare disease care

By Josep Catlla, EVP, Corporate Affairs Officer, Ipsen Every year, Rare Disease Day reminds us that rare conditions impact far

Rare Disease Day 2026: Listening to Patients to Imagine Better Futures

Rare diseases are more common than most people imagine, in how many lives they touch and in how profoundly they

Alagille syndrome (ALGS) Awareness Day – Where powerful connections can make the difference

“We were shocked” That is how Celine felt when her family received the news that her daughter Suzanne had been

This is My PBC

Meet Jo, living with PBC

Meet Wendy, living with PBC

Meet Gill, living with PBC