Category: Rare Disease

Joris is a thriving seven-and-a-half-year-old boy who has been on a journey requiring strength and hope from himself, and all

At just nine years old, Suzanne is a bright, creative young girl who loves dancing, drawing, exploring the woods, and

Professor David Jones and Professor Valerie McLin were compensated by Ipsen for their time.   Rare cholestatic liver diseases are conditions

. An article by Jennifer Schranz, Senior Vice President and Global Head of Rare Diseases at Ipsen In storytelling, you

. An article by Philippe Ghyssels, Vice President Corporate and Global Public Affairs For individuals living with a rare disease, every

Every day, millions of people around the world face the immense challenges of living with a rare disease. For these

. An article by Josep Catlla, Executive Vice President, Chief Corporate Affairs Officer “Each year, Rare Disease Day is a

. Only 1 in 30,000 children are born with ALGS each year1,2 This January, we are standing with the Alagille

A few months after Eva Luna was born, her mother Francesca realized something wasn’t quite right. Within the span of