Together for neurological conditions

Our collaborations with patient organizations

Working together with Global and European patient organizations

In neuroscience we have worked together with a number of Global and European patient communities.

“By working together, we are both dedicated to achieve our common goals: patients in the centre of our activities and to improve quality of life for patients and their carers.”
Dystonia Europe

Projects developed together with patient communities

Together with patient communities around the world we have worked on projects from research and development, to providing simple clinical study information, and patient support programs. The aim of these projects is to help make a difference for patients and their families and caregivers.

Find out what this impact looks like by exploring some our projects below.

Our areas of expertise

Neurological conditions affect the brain, spinal cord, or nerves. Neurological conditions may have a number of causes, including genetic factors, traumatic injury, autoimmune conditions, and infection. Many neurological conditions can have a huge impact on everyday life, so getting the right information and support is really important for people living with these conditions, their families and their caregivers.36,37

In the Useful resources section of this page you will find links to patient organization websites where you might be able to find additional information and support.

You can also listen to stories from people affected by rare diseases in the Experiences of living with neurological conditions section below.

Different types of neurological conditions

While there are over 600 known types of neurological conditions,37 Ipsen specializes in the treatment of, and support for people living with specific types of movement disorders.

Spasticity

Blepharospasm

Hemifacial spasm

Cervical dystonia

Useful resources

Finding information and support

Neurological conditions are often complex, so finding websites with reliable information is really important. Patient organization websites are often a good place to start for information and guidance on how to access physical and emotional support.

If you don’t know what local organizations exist, Global and European organisations can often help people to find local resources and groups. For example: 

Dystonia

Dystonia Europe

Spasticity

Safe Stroke, Stroke Alliance for Europe

Experiences of living with neurological conditions

Although discovering that you are living with a certain condition might feel quite daunting at times, you are certainly not alone.

Behind every person, there is a story and we believe you tell that story best.

If you have been affected by any of the experiences or topics discussed in this video, talk to your healthcare professional who may be able to direct you to the additional support you need.

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