In a recent conversation, Professor Björn Fischler, paediatric hepatologist at the Karolinska Institute in Sweden, and Laure Dorey, Director of
Category: Rare Disease
Beyond tired: Understanding fatigue in Primary Biliary Cholangitis
Most common symptoms of PBC Fatigue is a common and debilitating symptom of PBC Up to 55% of people living
Understanding PBC: Managing what Matters Most
Ipsen’s Sandra Silvestri sat down with Dr. Laura Cristoferi, Professor Mark Swain, and Professor David Jones to explore the latest
A Journey of Strength and Hope, Joris and Maria’s story
Joris is a thriving seven-and-a-half-year-old boy who has been on a journey requiring strength and hope from himself, and all
Céline and Suzanne: Navigating Alagille Syndrome
At just nine years old, Suzanne is a bright, creative young girl who loves dancing, drawing, exploring the woods, and
Living with Rare Liver Diseases: Unique challenges, Shared Experiences
Professor David Jones and Professor Valerie McLin were compensated by Ipsen for their time. Rare cholestatic liver diseases are conditions
Scientific Journey from Coal to Diamond: Myths and Misperceptions in Rare Disease Innovation
. An article by Jennifer Schranz, Senior Vice President and Global Head of Rare Diseases at Ipsen In storytelling, you
Breaking Barriers to Rare Disease Innovation: Reflections from the World EPA Congress
. An article by Philippe Ghyssels, Vice President Corporate and Global Public Affairs For individuals living with a rare disease, every
Rare Disease Day 2025: Imagining More for the Rare Disease Community
Every day, millions of people around the world face the immense challenges of living with a rare disease. For these
Imagining More for Rare Diseases: Reflections on the Path Ahead
. An article by Josep Catlla, Executive Vice President, Chief Corporate Affairs Officer “Each year, Rare Disease Day is a