Progressive Familial Intrahepatic Cholestasis (PFIC) can be a complex condition. Finding trusted information about PFIC shouldn’t be. PFIC Colors is
Category: Rare Disease
Mighty bonds: Leaning on others living with FOP
Carli and Erin, cross-country best friends, discuss how they’ve realized the importance of a strong support network of immediate family
Advocating for Yourself: L. Marie’s Experience with PBC
L. Marie started her career more than 20 years ago helping others access community health programs and healthcare—a skillset she
Life with FOP: Savannah’s Story
Savannah – or Sassy Savvy as she’s known by her family – is a caring sister, a strong-willed daughter and above all else, overfilling with creativity, happiness and laughter. Savannah is also living with a rare disease, fibrodysplasia ossificans progressiva (FOP), and while it has a great impact on her life, she nor her family let it define her.
Life with Primary Biliary Cholangitis: Sabrina’s Story
Sabrina is a lover of nature, mother and grandmother, whose outlook on life is to make every moment count. Sabrina lives with primary biliary cholangitis (PBC), which means every day is different depending on the severity of her symptoms, but this doesn’t stop her from doing the things she loves the most.