12 May 2023 – 1 mins read
Understanding the true impact of living with FOP
This year marks the 17th anniversary since the discovery of the ACVR1 gene was announced, a major scientific milestone in fibrodysplasia ossificans progressiva (FOP) research that helped us understand what causes the condition. On April 23, we marked FOP Awareness Day to honor…
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Showing: 1 – 5 of 12 stories
12 February 2024 – 4 mins read
Advocating for Yourself: L. Marie’s Experience with PBC
L. Marie started her career more than 20 years ago helping others access community health programs and healthcare—a skillset she never imagined would eventually be put to use advocating for her own health after being dismissed by her doctors.
31 January 2024 – 4 mins read
Closing Gaps in Cancer Care – Together
Dr. Mónica de Abadal, Head of Medical Affairs, North America at Ipsen shares why she believes it takes everyone in the healthcare ecosystem coming together to close existing gaps and address health inequities in cancer care.
14 December 2023 – 4 mins read
Music and Medicine: Understanding the role of epigenetics in cancer research
Dr. Amauri Soares, VP Head of Early Development & Innovation Oncology at Ipsen usesmusic to explain the importance of understanding the genetics of cancer and how the emerging field ofepigenetics could unlock a new paradigm for precision medicine.
07 December 2023 – 2 mins read
Living Every Moment: Debbie’s Experience with Follicular Lymphoma
Debbie has been living with a blood cancer, follicular lymphoma (FL), since 2011 when she was initially diagnosed during her studies in England. While living with an indolent cancer has had its challenges and can be filled with uncertainty, Debbie…
31 August 2023 – 2 mins read
Managing Post-Stroke Spasticity: Hub’s Story
Hub experienced a hemorrhagic stroke in 2021 as a result of bleeding in the brain. Like many stroke survivors, Hub experiences spasticity, a condition in which muscles contract uncontrollably leading to pain, stiffness and limited movement. As a father of…