Putting patients first
WORKING WITH PATIENTS, FOR PATIENTS
Ipsen works with patients, their families, and more than 250 patient organizations around the world at a global, regional, and national level. Our key priorities are sharing experiences. We want to guarantee that patients are truly given a seat at the table when it comes to their care and the developments that Ipsen is making. We believe this kind of close collaboration and inclusion is essential to ensure we chart the right course. Our goal is to understand and respond to patients’ needs, helping them and their caregivers at different points throughout their experiences. At Ipsen, we believe in working together with patients, for patients.
Ipsen CARES
Helping patients get access to their prescribed medications with the information and support they need
Ipsen CARES (Coverage, Access, Reimbursement & Education Support) serves as a central point of contact between patients/caregivers, healthcare providers, insurance companies, and Specialty Pharmacies.
Working with patient organizations
Acromegaly Community
American Liver Foundation
American Stroke Association (ASA)
Brain Injury Association of America (BIAA)
Carcinoid Cancer Foundation (CCF)
Cerebral Palsy Alliance Research Foundation (CPARF)
Dystonia Medical Research Foundation (DMRF)
EveryLife Foundation for Rare Diseases
Global Genes
Global Liver Institute
The Healing NET Foundation
International FOP Association (IFOPA)
Learn Advocate Connect NETS (LACNETS)
Leukemia & Lymphoma Society (LLS)
Lustgarten Foundation
MAGIC Foundation
Neuroendocrine Cancer Awareness Network (NCAN)
Neuroendocrine Tumor Research Foundation (NETRF)
National Organization for Rare Disorders (NORD)
Pancreatic Cancer Action Network (PanCAN)
World Pancreatic Cancer Coalition (WPCC)
Managing Post-Stroke Spasticity: Hub’s Story
Hub experienced a hemorrhagic stroke in 2021 as a result of bleeding in the brain. Like many stroke survivors, Hub experiences spasticity, a condition in which muscles contract uncontrollably leading to pain, stiffness and limited movement. As a father of…
Life with FOP: Savannah’s Story
Savannah – or Sassy Savvy as she’s known by her family – is a caring sister, a strong-willed daughter and above all else, overfilling with creativity, happiness and laughter. Savannah is also living with a rare disease, fibrodysplasia ossificans progressiva…
Caring for a Loved One with Metastatic Pancreatic Cancer: Nora’s Story
Nora and her husband, Hector, met 39 years ago, got married shortly after, and have been inseparable ever since. In 2021, Hector was diagnosed with metastatic pancreatic cancer, which threw their entire family into navigating a very difficult diagnosis. Nora…
Life with Primary Biliary Cholangitis: Sabrina’s Story
Sabrina is a lover of nature, mother and grandmother, whose outlook on life is to make every moment count. Sabrina lives with primary biliary cholangitis (PBC), which means every day is different depending on the severity of her symptoms, but…
Understanding the true impact of living with FOP
This year marks the 17th anniversary since the discovery of the ACVR1 gene was announced, a major scientific milestone in fibrodysplasia ossificans progressiva (FOP) research that helped us understand what causes the condition. On April 23, we marked FOP Awareness Day to honor…
‘A Life in a Day’: the realities of living with FOP
I was honored to be invited to take on the challenge to live ‘A Life in a Day of a patient with FOP’ – but also apprehensive. The challenge simulated a day spent living as someone who has fibrodysplasia ossificans…
OUR WORK WITH PATIENT ORGANIZATIONS
It all starts with listening. At Ipsen, we enter into dialogue with the patient community as early as possible when developing new medicines. Our focus is on long-term strategic engagement and partnerships with patient organizations.
Making a difference
Ipsen is committed to working closely and inclusively with the patient community to impact medical care and patient outcomes in our focus fields of Oncology, Rare Disease and Neuroscience.
Together for Oncology
We collaborate with patient communities across a range of different cancers, so that together we can develop solutions that truly make a difference to patients’ lives.
Together for Rare Disease
We transform our science to make a meaningful difference to the lives of people living with rare diseases.
Together for Neuroscience
Ipsen has worked together with many Global and European communities, supporting people affected by neurological conditions.
Patients drive our science in Oncology, Neuroscience and Rare Disease. Being in touch with what matters to patients and their families helps us understand their needs and work together to bring meaningful improvements to their lives.
Making clinical trials accessible and understandable
We are committed to ensuring that all our published research is freely available to everyone. To make this happen, we work closely with the patient community to provide summaries of key clinical studies sponsored by Ipsen in easy-to-understand language, so they are not just available, but accessible to all.
Ipsen Clinical Trials
Clinical trials can lead to medical outcomes that help improve lives, and we thank all of our patients who make this critical research possible through their participation in trials.
If you would like to learn more about enrolling in a study, visit clinicaltrials.gov and speak to your health care provider.
Our four-pillar approach to responsibility
Ipsen unites all our employees behind our global commitment to doing business responsibly through Generation Ipsen – For Positive Change. This fully integrated approach is built on four pillars: Environment, Patients, People and Governance. Generation Ipsen is designed to ensure we meet patients’ needs while working in ways that are ethical, responsible and community-minded.