At Ipsen, patients motivate every decision we make.


Ipsen works with patients, their families, and more than 250 patient organizations around the world at a global, regional, and national level. Our key priorities are sharing experiences. We want to guarantee that patients are truly given a seat at the table when it comes to their care and the developments that Ipsen is making. We believe this kind of close collaboration and inclusion is essential to ensure we chart the right course.  Our goal is to understand and respond to patients’ needs, helping them and their caregivers at different points throughout their experiences. At Ipsen, we believe in working together with patients, for patients.

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Helping patients get access to their prescribed medications with the information and support they need

Ipsen CARES (Coverage, Access, Reimbursement & Education Support) serves as a central point of contact between patients/caregivers, healthcare providers, insurance companies, and Specialty Pharmacies.

Working with patient organizations

Acromegaly Community

American Liver Foundation

American Stroke Association (ASA)

Brain Injury Association of America (BIAA)

Carcinoid Cancer Foundation (CCF)

Cerebral Palsy Alliance Research Foundation (CPARF)

Dystonia Medical Research Foundation (DMRF)

EveryLife Foundation for Rare Diseases

Global Genes

Global Liver Institute

The Healing NET Foundation

International FOP Association (IFOPA)

Learn Advocate Connect NETS (LACNETS)

Leukemia & Lymphoma Society (LLS)

Lustgarten Foundation

MAGIC Foundation

Neuroendocrine Cancer Awareness Network (NCAN)

Neuroendocrine Tumor Research Foundation (NETRF)

National Organization for Rare Disorders (NORD)

Pancreatic Cancer Action Network (PanCAN)

World Pancreatic Cancer Coalition (WPCC)

Discover trending stories for Patients

12 May 2023 4 mins read
Understanding the true impact of living with FOP

This year marks the 17th anniversary since the discovery of the ACVR1 gene was announced, a major scientific milestone in fibrodysplasia ossificans progressiva (FOP) research that helped us…

05 September 2022 5 mins read
‘A Life in a Day’: the realities of living with FOP

I was honored to be invited to take on the challenge to live ‘A Life in a Day of a patient with FOP’ – but…


It all starts with listening. At Ipsen, we enter into dialogue with the patient community as early as possible when developing new medicines. Our focus is on long-term strategic engagement and partnerships with patient organizations.

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Patients drive our science in Oncology, Neuroscience and Rare Disease. Being in touch with what matters to patients and their families helps us understand their needs and work together to bring meaningful improvements to their lives.

Sandra Silvestri, M.D., Ph.D.

EVP, Chief Medical Officer, Head of Global Medical Affairs, Patient Safety and Patient Affairs

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Making clinical trials accessible and understandable

We are committed to ensuring that all our published research is freely available to everyone. To make this happen, we work closely with the patient community to provide summaries of key clinical studies sponsored by Ipsen in easy-to-understand language, so they are not just available, but accessible to all.

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Ipsen Clinical Trials

Clinical trials can lead to medical outcomes that help improve lives, and we thank all of our patients who make this critical research possible through their participation in trials.

If you would like to learn more about enrolling in a study, visit and speak to your health care provider.

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Our four-pillar approach to responsibility

Ipsen unites all our employees behind our global commitment to doing business responsibly through Generation Ipsen – For Positive Change. This fully integrated approach is built on four pillars: Environment, Patients, People and Governance. Generation Ipsen is designed to ensure we meet patients’ needs while working in ways that are ethical, responsible and community-minded.