We make the biggest impact when we work with people who live with a rare disease, cancer or a neurological condition, their families and caregivers to really understand the realities of their experience. When we talk about patient centricity, we understand being a patient is only one aspect of a person’s identity. Ipsen works with more than 25 patient advocacy organizations in the U.S. to ensure people impacted by the disease or condition are truly given a seat at the table when it comes to their care and the developments that Ipsen is making. We believe this kind of close collaboration and inclusion is essential to ensure we chart the right course.

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Helping patients get access to their prescribed medications with the information and support they need

Ipsen CARES (Coverage, Access, Reimbursement & Education Support) serves as a central point of contact between patients/caregivers, healthcare providers, insurance companies, and Specialty Pharmacies.

Working with patient organizations

Acromegaly Community

Alagille Syndrome Alliance

American Liver Foundation

American Stroke Association (ASA)

BA Hero


Brain Injury Association of America (BIAA)

Carcinoid Cancer Foundation (CCF)

Cerebral Palsy Alliance Research Foundation (CPARF)

Dystonia Medical Research Foundation (DMRF)

EveryLife Foundation for Rare Diseases

Global Genes

Global Liver Institute

The Healing NET Foundation

International FOP Association (IFOPA)

Learn Advocate Connect NETS (LACNETS)

Let’s Win Pancreatic Cancer

Leukemia & Lymphoma Society (LLS)

Lustgarten Foundation

Lymphoma Research Foundation

National Organization for Rare Disorders (NORD)

Neuroendocrine Cancer Awareness Network (NCAN)

Neuroendocrine Tumor Research Foundation (NETRF)

Pancreatic Cancer Action Network (PanCAN)


PFIC Network

PSC Partners

Sarcoma Alliance

Sarcoma Foundation of America

World Pancreatic Cancer Coalition (WPCC)

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Making clinical trials accessible and understandable

We are committed to ensuring that all our published research is freely available to everyone. To make this happen, we work closely with the patient community to provide summaries of key clinical studies sponsored by Ipsen in easy-to-understand language, so they are not just available, but accessible to all.

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Find a clinical trial

Clinical trials can lead to medical outcomes that help improve lives, and we thank all people who make this critical research possible through their participation in trials.

If you would like to learn more about enrolling in a study, visit, speak to your health care provider or learn more about clinical trials sponsored by Ipsen.

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Our four-pillar approach to responsibility

Ipsen unites all our employees behind our global commitment to doing business responsibly through Generation Ipsen – For Positive Change. This fully integrated approach is built on four pillars: Environment, Patients, People and Governance. Generation Ipsen is designed to ensure we meet patients’ needs while working in ways that are ethical, responsible and community-minded.

Discover trending stories for Patients

03 June 2024 3 mins read

Better, Bolder Science: Across the bench collaboration in epigenetics

Dr. Lindsey Rodrigues, a biomedical engineer and cancer biologist by training, and Lindsey Eichinger, who has a background in veterinary sciences and cell biology, are two scientists at Ipsen leading the exploration of epigenetics – a new frontier for cancer research and the future of cancer.

10 May 2024 3 mins read

Seven Years Out: The road to recovery from a stroke-like episode

Randy loves to read, enjoy the outdoors, and spend time with his family. He enjoys going to the gym and took up aquatic therapy to exercise and make new friends. He’s come a long way since he experienced a car…

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Measuring pancreatic cancer care in moments

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15 April 2024 3 mins read

Mighty bonds: Leaning on others living with FOP

Carli and Erin, cross-country best friends, discuss how they’ve realized the importance of a strong support network of immediate family and friends, along with people who have a shared experience of living with FOP. Their connections have been key to…

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Advocating for Yourself: L. Marie’s Experience with PBC

L. Marie started her career more than 20 years ago helping others access community health programs and healthcare—a skillset she never imagined would eventually be put to use advocating for her own health after being dismissed by her doctors.  

31 January 2024 4 mins read

Closing Gaps in Cancer Care – Together

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14 December 2023 4 mins read

Music and Medicine: Understanding the role of epigenetics in cancer research

Dr. Amauri Soares, VP Head of Early Development & Innovation Oncology at Ipsen usesmusic to explain the importance of understanding the genetics of cancer and how the emerging field ofepigenetics could unlock a new paradigm for precision medicine.

07 December 2023 2 mins read

Living Every Moment: Debbie’s Experience with Follicular Lymphoma

Debbie has been living with a blood cancer, follicular lymphoma (FL), since 2011 when she was initially diagnosed during her studies in England. While living with an indolent cancer has had its challenges and can be filled with uncertainty, Debbie…

31 August 2023 2 mins read

Managing Post-Stroke Spasticity: Hub’s Story

Hub experienced a hemorrhagic stroke in 2021 as a result of bleeding in the brain. Like many stroke survivors, Hub experiences spasticity, a condition in which muscles contract uncontrollably leading to pain, stiffness and limited movement. As a father of…

31 August 2023 2 mins read

Life with FOP: Savannah’s Story

Savannah – or Sassy Savvy as she’s known by her family – is a caring sister, a strong-willed daughter and above all else, overfilling with creativity, happiness and laughter. Savannah is also living with a rare disease, fibrodysplasia ossificans progressiva…