At Ipsen, patients motivate every decision we make.


Ipsen works with patients, their families, and more than 250 patient organizations around the world at a global, regional, and national level. Our key priorities are sharing experiences. We want to guarantee that patients are truly given a seat at the table when it comes to their care and the developments that Ipsen is making. We believe this kind of close collaboration and inclusion is essential to ensure we chart the right course.  Our goal is to understand and respond to patients’ needs, helping them and their caregivers at different points throughout their experiences. At Ipsen, we believe in working together with patients, for patients.

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Helping patients get access to their prescribed medications with the information and support they need

Ipsen CARES (Coverage, Access, Reimbursement & Education Support) serves as a central point of contact between patients/caregivers, healthcare providers, insurance companies, and Specialty Pharmacies.

Working with patient organizations

Acromegaly Community

American Liver Foundation

American Stroke Association (ASA)

Brain Injury Association of America (BIAA)

Carcinoid Cancer Foundation (CCF)

Cerebral Palsy Alliance Research Foundation (CPARF)

Dystonia Medical Research Foundation (DMRF)

EveryLife Foundation for Rare Diseases

Global Genes

Global Liver Institute

The Healing NET Foundation

International FOP Association (IFOPA)

Learn Advocate Connect NETS (LACNETS)

Leukemia & Lymphoma Society (LLS)

Lustgarten Foundation

MAGIC Foundation

Neuroendocrine Cancer Awareness Network (NCAN)

Neuroendocrine Tumor Research Foundation (NETRF)

National Organization for Rare Disorders (NORD)

Pancreatic Cancer Action Network (PanCAN)

World Pancreatic Cancer Coalition (WPCC)

Discover trending stories for Patients

12 February 2024 4 mins read

Advocating for Yourself: L. Marie’s Experience with PBC

L. Marie started her career more than 20 years ago helping others access community health programs and healthcare—a skillset she never imagined would eventually be put to use advocating for her own health after being dismissed by her doctors.  

31 January 2024 4 mins read

Closing Gaps in Cancer Care – Together

Dr. Mónica de Abadal, Head of Medical Affairs, North America at Ipsen shares why she believes it takes everyone in the healthcare ecosystem coming together to close existing gaps and address health inequities in cancer care. 

14 December 2023 4 mins read

Music and Medicine: Understanding the role of epigenetics in cancer research

Dr. Amauri Soares, VP Head of Early Development & Innovation Oncology at Ipsen usesmusic to explain the importance of understanding the genetics of cancer and how the emerging field ofepigenetics could unlock a new paradigm for precision medicine.

07 December 2023 2 mins read

Living Every Moment: Debbie’s Experience with Follicular Lymphoma

Debbie has been living with a blood cancer, follicular lymphoma (FL), since 2011 when she was initially diagnosed during her studies in England. While living with an indolent cancer has had its challenges and can be filled with uncertainty, Debbie…

31 August 2023 2 mins read

Managing Post-Stroke Spasticity: Hub’s Story

Hub experienced a hemorrhagic stroke in 2021 as a result of bleeding in the brain. Like many stroke survivors, Hub experiences spasticity, a condition in which muscles contract uncontrollably leading to pain, stiffness and limited movement. As a father of…

31 August 2023 2 mins read

Life with FOP: Savannah’s Story

Savannah – or Sassy Savvy as she’s known by her family – is a caring sister, a strong-willed daughter and above all else, overfilling with creativity, happiness and laughter. Savannah is also living with a rare disease, fibrodysplasia ossificans progressiva…

31 August 2023 2 mins read

Caring for a Loved One with Metastatic Pancreatic Cancer: Nora’s Story

Nora and her husband, Hector, met 39 years ago, got married shortly after, and have been inseparable ever since. In 2021, Hector was diagnosed with metastatic pancreatic cancer, which threw their entire family into navigating a very difficult diagnosis. Nora…

31 August 2023 2 mins read

Life with Primary Biliary Cholangitis: Sabrina’s Story

Sabrina is a lover of nature, mother and grandmother, whose outlook on life is to make every moment count. Sabrina lives with primary biliary cholangitis (PBC), which means every day is different depending on the severity of her symptoms, but…

12 May 2023 4 mins read

Understanding the true impact of living with FOP

This year marks the 17th anniversary since the discovery of the ACVR1 gene was announced, a major scientific milestone in fibrodysplasia ossificans progressiva (FOP) research that helped us understand what causes the condition. On April 23, we marked FOP Awareness Day to honor…

05 September 2022 5 mins read

‘A Life in a Day’: the realities of living with FOP

I was honored to be invited to take on the challenge to live ‘A Life in a Day of a patient with FOP’ – but also apprehensive. The challenge simulated a day spent living as someone who has fibrodysplasia ossificans…


It all starts with listening. At Ipsen, we enter into dialogue with the patient community as early as possible when developing new medicines. Our focus is on long-term strategic engagement and partnerships with patient organizations.

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Patients drive our science in Oncology, Neuroscience and Rare Disease. Being in touch with what matters to patients and their families helps us understand their needs and work together to bring meaningful improvements to their lives.

Sandra Silvestri, M.D., Ph.D.

EVP, Chief Medical Officer, Head of Global Medical Affairs, Patient Safety and Patient Affairs

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Making clinical trials accessible and understandable

We are committed to ensuring that all our published research is freely available to everyone. To make this happen, we work closely with the patient community to provide summaries of key clinical studies sponsored by Ipsen in easy-to-understand language, so they are not just available, but accessible to all.

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Ipsen Clinical Trials

Clinical trials can lead to medical outcomes that help improve lives, and we thank all of our patients who make this critical research possible through their participation in trials.

If you would like to learn more about enrolling in a study, visit and speak to your health care provider.

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Our four-pillar approach to responsibility

Ipsen unites all our employees behind our global commitment to doing business responsibly through Generation Ipsen – For Positive Change. This fully integrated approach is built on four pillars: Environment, Patients, People and Governance. Generation Ipsen is designed to ensure we meet patients’ needs while working in ways that are ethical, responsible and community-minded.