“We’re often asked, what is the PBC journey? And the challenge is that, well, the PBC journey doesn’t exist. There
Category: Rare Disease
How physicians can help empower people living with Primary Biliary Cholangitis
During the European Association for the Study of the Liver (EASL) congress, leading liver experts, Dr Mark Swain, Dr Emma
The importance of personalized care to empower patients with PBC
At the European Association for the Study of the Liver (EASL) congress, leading liver experts discuss the importance of proactive,
Exploring life and parenthood with Primary Biliary Cholangitis
Sandra Silvestri, Executive Vice President & Chief Medical Officer at Ipsen, reflects on the challenges women living with primary biliary
Progressive Familial Intrahepatic Cholestasis (PFIC): Liver experts discuss early diagnosis and management
Progressive Familial Intrahepatic Cholestasis (PFIC) is a rare liver disease that can pose significant challenges, particularly in young children1, but
Going on a PBC journey together
At seventy-one-years young, Gill, a devoted mother and grandmother from Nottinghamshire, loves spending time with her grandchildren and gardening. She
Life with Primary Biliary Cholangitis: Sabrina’s Story
Sabrina is a lover of nature, mother and grandmother, whose outlook on life is to make every moment count. Sabrina
Working together to create positive change in rare diseases
Every four years, Rare Disease Day lands on the ‘rarest’ day of the year, 29th February. Due to leap years,
The not-so-rare challenges of rare liver diseases
Hearing a rare liver disease diagnosis can be one of the most emotionally turbulent moments in a person’s life.1 For
Primary Biliary Cholangitis: The Power of Patient Reported Outcomes
“The important thing with PBC is to take a holistic view of it, and think ‘What are the problems we