. Only 1 in 30,000 children are born with ALGS each year1,2 This January, we are standing with the Alagille
Category: Rare Disease
Advocating for babies with Biliary Atresia
Biliary Atresia (BA) is a rare liver disease that usually appears in the first month of a baby’s life.1 In
Looking after a loved one with Progressive Familial Intrahepatic Cholestasis: Francesca’s Story
A few months after Eva Luna was born, her mother Francesca realized something wasn’t quite right. Within the span of
Partnering for Progress: The Importance of Collaboration in Primary Biliary Cholangitis (PBC) Awareness
Sandra Silvestri, Executive Vice President & Chief Medical Officer at Ipsen, reflects on the theme for this year’s PBC Awareness
Provide Better Care: PBC Awareness Day 2024
“We’re often asked, what is the PBC journey? And the challenge is that, well, the PBC journey doesn’t exist. There
How physicians can help empower people living with Primary Biliary Cholangitis
During the European Association for the Study of the Liver (EASL) congress, leading liver experts, Dr Mark Swain, Dr Emma
The importance of personalized care to empower patients with PBC
At the European Association for the Study of the Liver (EASL) congress, leading liver experts discuss the importance of proactive,
Exploring life and parenthood with Primary Biliary Cholangitis
Sandra Silvestri, Executive Vice President & Chief Medical Officer at Ipsen, reflects on the challenges women living with primary biliary
Progressive Familial Intrahepatic Cholestasis (PFIC): Liver experts discuss early diagnosis and management
Progressive Familial Intrahepatic Cholestasis (PFIC) is a rare liver disease that can pose significant challenges, particularly in young children1, but
Going on a PBC journey together
At seventy-one-years young, Gill, a devoted mother and grandmother from Nottinghamshire, loves spending time with her grandchildren and gardening. She