Rare Disease Archives - Page 2 of 5 - Global

Advocating for babies with Biliary Atresia 

Biliary Atresia (BA) is a rare liver disease that usually appears in the first month of a baby’s life.1 In

Looking after a loved one with Progressive Familial Intrahepatic Cholestasis: Francesca’s Story

A few months after Eva Luna was born, her mother Francesca realized something wasn’t quite right. Within the span of

Partnering for Progress: The Importance of Collaboration in Primary Biliary Cholangitis (PBC) Awareness  

Mature Female Friends Socializing In Backyard Together

Sandra Silvestri, Executive Vice President & Chief Medical Officer at Ipsen, reflects on the theme for this year’s PBC Awareness

Provide Better Care: PBC Awareness Day 2024 

“We’re often asked, what is the PBC journey? And the challenge is that, well, the PBC journey doesn’t exist. There

How physicians can help empower people living with Primary Biliary Cholangitis 

During the European Association for the Study of the Liver (EASL) congress, leading liver experts, Dr Mark Swain, Dr Emma

The importance of personalized care to empower patients with PBC 

At the European Association for the Study of the Liver (EASL) congress, leading liver experts discuss the importance of proactive,

Exploring life and parenthood with Primary Biliary Cholangitis 

Sandra Silvestri, Executive Vice President & Chief Medical Officer at Ipsen, reflects on the challenges women living with primary biliary

Progressive Familial Intrahepatic Cholestasis (PFIC): Liver experts discuss early diagnosis and management 

Progressive Familial Intrahepatic Cholestasis (PFIC) is a rare liver disease that can pose significant challenges, particularly in young children1, but

Going on a PBC journey together

lady and her friends and family for ipsen for CAPA pictures by ioan said photography

At seventy-one-years young, Gill, a devoted mother and grandmother from Nottinghamshire, loves spending time with her grandchildren and gardening. She

Life with Primary Biliary Cholangitis: Sabrina’s Story

Sabrina is a lover of nature, mother and grandmother, whose outlook on life is to make every moment count. Sabrina