Understanding the true impact of living with FOP

This year marks the 17th anniversary since the discovery of the ACVR1 gene was announced, a major scientific milestone in fibrodysplasia ossificans progressiva

‘A Life in a Day’: the realities of living with FOP

I was honored to be invited to take on the challenge to live ‘A Life in a Day of a

Our pledge: summaries in plain language for all journal publications

Today, we are broadening our commitment to providing everyone with the opportunity to read and understand our research. From July