Living with PBC: The Person Behind the Chart
‘Invisible’ diseases like primary biliary cholangitis (PBC) can be difficult to recognise, diagnose and to manage effectively. Here Prof. Gideon Hirschfield (University of Toronto, Departments of Medicine, Immunology and Medical Sciences) and Robert Mitchell-Thain, (PBC Foundation UK) discuss the disease, how it presents and the challenges facing people living with this rare liver disease.
Watch the video below containing some excerpts of this discussion, focusing on what people with PBC and doctors can do to better understand each other and have a better conversation, which may lead to better outcomes for people with PBC.
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Understanding PBC: Managing what Matters Most
A Journey of Strength and Hope, Joris and Maria’s story
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Living with Rare Liver Diseases: Unique challenges, Shared Experiences
Scientific Journey from Coal to Diamond: Myths and Misperceptions in Rare Disease Innovation
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Rare Disease Day 2025: Imagining More for the Rare Disease Community