Disclosures from the UK & Ireland towards Healthcare Organisations, Healthcare Professionals, Patient Organisations and Members of the Public can be found here.
United Kingdom:
Annually, all payments made by Ipsen to UK healthcare professionals and healthcare organisations during the previous calendar year will be disclosed on a searchable and publicly accessible central database on The Association of the British Pharmaceutical Industry (ABPI) website, known as Disclosure UK, accessed via the following web address:
https://search.disclosureuk.org.uk/.
Ireland:
Annually, all payments made by Ipsen to Irish healthcare professionals and healthcare organisations during the previous calendar year will be disclosed on a publicly accessible central platform. Summary details of how IPHA member companies engage with and support healthcare professionals and healthcare organisations through direct or indirect financial support, or ‘Transfers of Value’, will be made public on www.transferofvalue.ie.
Improving the lives of patients is what drives us at Ipsen. We view our work with patient advocacy groups as a pivotal part of delivering on that ambition.
At Ipsen we pride ourselves on working with patient advocacy groups in a way that reflects our core ethical values and maintains integrity. We strive to build long-term partnerships that offer mutual value, support the independent initiatives of patient advocacy groups and help them achieve their ambitions for patients.
Throughout every collaboration we set clear goals, operate transparently and always support a patient organisation’s need to remain independent. Details of financial support Ipsen has provided to patient groups in the UK and Ireland are set out below.
Sponsorship and financial support of UK and Ireland patient advocacy groups and charities
Ipsen is pleased to have provided support to the following Patient Organisations & charities in the UK in 2020:
| Organisation | Description of the Services Provided | Amount paid towards activities in 2020 (£) |
| British Liver Trust | Unsolicited grant for nurse-led helpline and online support community | 10,000.00 |
| FOP Friends | Unsolicited grant for development of interactive children’s publication | 15,000.00 |
| FOP Friends | Speaker fees and expenses for attendance at Ipsen staff event | 539.00 |
| Kidney Cancer UK | Unsolicited grant for support of patient survey and kidney cancer awareness week | 10,000.00 |
| Kidney Cancer UK | Development of recipe and exercise videos as part of patient support program, in collaboration, to be used to support patient community during COVID | 16,285.00 |
| Kidney Cancer Support Network | Unsolicited grant for support of World Kidney Cancer Day 2020 | 4,725.00 |
| Neuroendocrine Cancer UK | Unsolicited grant for development of digital nurse education platform | 9,800.00 |
| Neuroendocrine Cancer UK | Disease awareness social media campaign developed and disseminated in collaboration | 16,950.00 |
| Prostate Cancer Research Centre | Consulting fee for attendance at patient group summit | 300.00 |
| Prostate Cancer Research Centre | Development of “Living with prostate cancer: impact on physical and mental wellbeing” patient market research in collaboration | 10,000.00 |
| Prostate Cancer UK | Consulting fee for attendance at patient group summit | 300.00 |
| Tackle Prostate Cancer | Consulting fee for attendance of two members at patient group summit | 600.00 |
| The Dystonia Society | Unsolicited grant for development of digital materials in time of social isolation | 10,000.00 |
| The Pituitary Foundation | Unsolicited grant for development of Pituitary Life magazine | 5,000.00 |
| The Pituitary Foundation | Consulting fee for attendance at advisory board | 525.00 |
110,024.00 |
Ipsen is pleased to have provided sponsorship to the following Patient Organisations & Charities in the UK in 2021:
| Organisation | Description of Services Provided | Amount Paid Towards Activities in 2021 (£) |
| AMEND – Association for Multiple Endocrine Neoplasia Disorders | Unsolicited grant for annual patient information day and patient experience awareness films | 6,880.00 |
| British Liver Trust | Unsolicited grant for Liver Cancer Awareness month (2021) and Education project | 10,600.00 |
| Cancer52 | Unsolicited grant for Cancer52 showcase video project | 11,990.00 |
| Different Strokes | Sponsorship and input of a double-page article within Different Strokes newsletter | 900.00 |
| Dystonia UK | Unsolicited grant for production of a series of animations to explain Dystonia in childhood | 10,000.00 |
| Footsteps Foundation | Donation: Ipsen in Motion – 10,000 footsteps for Footsteps Foundation, an annual site event to raise funds | 3,000.00 |
| FOP Friends | Unsolicited grant for FOP Awareness and Explainer Videos | 20,000.00 |
| Kidney Cancer UK | Sponsorship of Kidney Cancer UK Accord Project | 15,000.00 |
| Kidney Cancer UK | Unsolicited grant for patient surveys and Kidney Cancer Awareness Week run in 2022 | 2,000.00 |
| Kidney Cancer Support Network (now Action Kidney Cancer) | Unsolicited grant for community outreach programme for kidney cancer patients | 15,000.00 |
| Kidney Cancer Support Network (now Action Kidney Cancer) | Online Presentation by Karen McNee at Scottish Oncology Meeting (19th May 2021) | 333.50 |
| Neuroendocrine Cancer UK | Unsolicited grant to support both the Patient Information Factsheet and Bridging the Gap Campaign | 15,776.00 |
| Pancreatic Cancer Action | Patient Organisation consultancy fee – collaborating with patient organisations workshop. Ipsen UK internal corporate affairs workshop to generate insight and understanding on best practice when working with Patient Organisations | 200.00 |
| Pelican Cancer Foundation | Sponsorship to support Kent and Hampshire Hospitals NET Centre of Excellence meeting | 7,500.00 |
| Prostate Cancer Research | Consulting fee for review of CPRD CLIN-52014-451 study protocol | 750.00 |
| The Pituitary Foundation | Unsolicited grant for a 5-month digital programme, sponsorship of regional events, provision of a new laptop for Communications Officer. | 4,800.00 |
| Supporting Sick New-born and their Parents | Donation towards/sponsorship of the runners representing Ipsen Milton Park R&D Hub for the Ipsen in Motion programme (Social Responsibility initiative) | 1,500.00 |
126,149.50 |
Ipsen is pleased to have collaborated with the following Patient Organisations & Charities in the UK in 2021:
| Organisation | Description of Collaboration | Cost of activity in 2021 (£) |
|
Prostate Cancer Research (PCR) and Tackle Prostate Cancer |
“Let’s talk about the Hard Things” Campaign
A collaborative social media/media campaign to raise awareness about living with side effects of prostate cancer treatment. Ipsen has fully funded this campaign and paid for the following:
No payments were made to either PCR or Tackle Prostate Cancer as part of this project. Read more about this project here: Let’s Talk About The Hard Things – Prostate Cancer Research (prostate-cancer-research.org.uk) |
£70,200.00 |
Ipsen is pleased to have provided sponsorship to the following Patient Organisations & Charities in the UK in 2022:
| Organisation | Description of Services Provided | Amount Paid Towards Activities in 2022 (£) |
| Action Kidney Cancer | Patient testimonial and video of a patient that was treated for kidney cancer | 1,200.00 |
| Cancer52 | Cancer52 Corporate Event Supporter (Event Sponsor) | 10,000.00 |
| Dystonia Society | Sponsorship of patient awards, held annually to recognise those who have gone above and beyond in the dystonia community | 5,000.00 |
| FOP Friends | Sponsorship of the FOP Friends Conference and Family Gathering | 24,000.00 |
| Gene People | Grant request towards the work of the Gene People’s helpline | 4,000.00 |
| Gene People | Corporate Connection Membership Fee to cover partnership in 2022-2023, to include sponsorship of newsletter | 10,000.00 |
| Neuroendocrine Cancer UK | Fees toward Speaker at the Ipsen Educational Exchange 2022 Event | 423.79 |
| Neuroendocrine Cancer UK | Development of the Ideal Patient Care Pathway for Neuroendocrine Cancer | 12,500.00 |
| Neuroendocrine Cancer UK | Development of the Ideal Patient Care Pathway for Neuroendocrine Cancer | 6,250.00 |
| Prostate Cancer Research Centre | Prostate Cancer Research patient webinar series | 20,400.00 |
| The Stroke Association Ltd | Corporate Sponsorship to a congress organised by The Stroke Association | 28,000.00 |
| The Stroke Association Ltd | Sponsorship of the UK Stroke Forum, annual healthcare professional conference held November-December 2022 | 5,600.00 |
| T/A Kidney Cancer UK | Survey and Kidney Cancer Awareness Week (part 2 of a 3 part grant paid over 3 years) | 2,000.00 |
| T/A Kidney Cancer UK | Sponsorship of Kidney Cancer UK Accord Project | 2,500.00 |
| £131,873.79 |
Ipsen is pleased to have provided support to the following Patient Organisations & charities in Ireland in 2020:
| Organisation | Country | Types of the support or services provided | Description of the support or services | Monetary value of financial support and of invoiced costs (€) | Non-monetary benefit for PO |
| NET Patient Network | Ireland | Financial support | Sponsorship of their Annual NET Patient Day | 2,000 | N/A |
Ipsen is pleased to have provided sponsorship to the following Patient Organisations & Charities in Ireland in 2021:
| Organisation | Country | Types of the Support or Services Provided | Description of the Services Provided | Monetary value of financial support and of invoiced costs (€) | Non-monetary benefit for PO |
| Beaumont Hospital | Ireland | Therapeutic support | Unsolicited request for handheld EMG device and pictorial atlas of Botulinum toxin | 3,533 | Handheld EMG device and pictorial atlas of Botulinum toxin |
| Irish Heart Foundation Stroke Conference | Ireland | Financial support | Sponsorship – unsolicited request | 3,000 | N/A |
| NET Patient Network | Ireland | Financial support | Sponsorship – unsolicited request | 1,500 | N/A |
8,033.00 |
Ipsen is pleased to have provided sponsorship to the following Patient Organisations & Charities in Ireland in 2022:
| Organisation | Country | Types of the Support or Services Provided | Description of Services Provided | Monetary value of financial support and of invoiced costs (€) | Non-monetary benefit for PO |
| NET Patient Network | Ireland | Financial Support | Website Sponsorship | 2,000.00 | N/A |
| Irish Endocrine Society | Ireland | Financial Support | Irish Endocrine Society Annual Meeting | 3,500.00 | N/A |
| NET Patient Network | Ireland | Financial Support | NET Patient Support | 5,000.00 | N/A |
| Irish Heart Foundation | Ireland | Financial Support | The Irish Heart Foundation together with the Northern Ireland Multidisciplinary Association of Stroke Teams (NIMAST) delivered the first all-island stroke conference in 2022 | 5,000.00 | N/A |
| 15,500.00 |
Ipsen engages with members of the UK public including patients, health economists and journalists in line with Industry Codes of Practice and Ipsen’s policy requirements and is committed to make publicly available annually details of the fees provided for the contracted services. These services might include speaking at meetings, assistance with training, writing articles and/or publications, participating in advisory boards, advising on the design etc. of clinical trials, participating in market research where such participation involves remuneration and/or travel.
For the purposes of transparency and clarity, the following declarations include fees provided by Ipsen UK to members of the public based in the UK, paid in 2022.
Payments to Member(s) of the Public:
| NUMBER OF INDIVIDUALS |
DESCRIPTION OF SUPPORT | CONTRACTED SERVICES PROVIDED | |
| FEEs (£) | OUT OF POCKET EXPENSES (£) | ||
| 1 | Consultancy work for evidence generation and health economics activities | 1,202.50 | N/A |
Payments to Patients:
| NUMBER OF RECIPIENTS IN AGGREGATE DISCLOSURE | DESCRIPTION OF SUPPORT | CONTRACTED SERVICES PROVIDED | |
| FEES (£) | OUT OF POCKET EXPENSES (£) | ||
| 5 | Providing patient testimonial/experience | 775.00 | N/A |
| 4 | Patient speaking at a live event | 1,000.00 | N/A |
| 2 | Patient speaking at a live event | N/A | 1,562.17 |
| 4 | Advisory board | 1,362.50 | N/A |
| 4 | Filming in person | 1,300.00 | N/A |
| 4 | Talking FOP guide | 300.00 | N/A |
ALLSC-GB-000367
June 2023