Patient stories

Although discovering that you are living with a certain condition might feel quite daunting at times, you are certainly not alone. Behind every patient, there is a story and we believe you tell that story best. The following stories range from living with cancer to being diagnosed with acromegaly, or how it is to deal with mobility impairment.

Living with FOP

Marin –

“I was three when someone noticed a stiffness in my neck and back area.”


Living with acromegaly

Wade –

“I’m still in some pain, but I’m able to deal with it much better.”


Richard –

“You have to face up to having a life-long condition, having negative feelings solves nothing”


Living with breast cancer

Lili –

“When I was diagnosed with breast cancer I was overwhelmed by the impact it would have on others, and the pity I felt from them because of my young age.”



Breast cancer

Living with NETs

Ronny –

“My diagnosis was through complete chance, and was triggered when I told a nurse I’d lost weight.”


Living with dystonia

Monica –

“It became worse and worse and I was in bed most of the summer”


For more patient testimonies we kindly refer you to

© Ipsen Pharma, 65 Quai Georges Gorse, 92100 Boulogne-Billancourt, France. All rights reserved. - 2019