{"id":3258,"date":"2026-11-12T11:17:24","date_gmt":"2026-11-12T09:17:24","guid":{"rendered":"https:\/\/www.ipsen.com\/germany\/?p=3258"},"modified":"2026-11-12T11:17:27","modified_gmt":"2026-11-12T09:17:27","slug":"wir-brauchen-auch-bei-seltenen-erkrankungen-klinische-studien","status":"publish","type":"post","link":"https:\/\/www.ipsen.com\/germany\/allgemein\/wir-brauchen-auch-bei-seltenen-erkrankungen-klinische-studien\/","title":{"rendered":"\u201eWir brauchen auch bei Seltenen Erkrankungen klinische Studien\u201c"},"content":{"rendered":"\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" height=\"570\" width=\"1024\" src=\"https:\/\/www.ipsen.com\/germany\/wp-content\/uploads\/sites\/6\/2026\/11\/Niklas-II-1.png?w=1024\" alt=\"\" class=\"wp-image-3267\" srcset=\"https:\/\/www.ipsen.com\/germany\/wp-content\/uploads\/sites\/6\/2026\/11\/Niklas-II-1.png 1360w, https:\/\/www.ipsen.com\/germany\/wp-content\/uploads\/sites\/6\/2026\/11\/Niklas-II-1.png?resize=300,167 300w, https:\/\/www.ipsen.com\/germany\/wp-content\/uploads\/sites\/6\/2026\/11\/Niklas-II-1.png?resize=768,427 768w, https:\/\/www.ipsen.com\/germany\/wp-content\/uploads\/sites\/6\/2026\/11\/Niklas-II-1.png?resize=1024,570 1024w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n    <section class=\"title-text \">\n        <div class=\"container\">\n            <div class=\"title-text-inner\" style=\"background-color:#EDEBE4;\">\n\n                <!-- If heading is enabled then it's visible -->\n                <div class=\"text-head-dash visible\">\n                <h3 class=\"heading-three\" role=\"heading\" aria-level=\"2\">\n                        Dr. Niklas M\u00fcnchmeier bei STUDIENWIRKEN 2026                    <\/h3>\n                <\/div>\n               \n                <!-- If description is enabled then it's visible -->\n                <div class=\"text-parbase visible\">\n                    <p>Wie k\u00f6nnen klinische Studien dazu beitragen, neue Therapieoptionen f\u00fcr Menschen mit Seltenen Erkrankungen zu entwickeln, wenn nur sehr wenige Patientinnen und Patienten f\u00fcr eine Studienteilnahme infrage kommen?<\/p>\n<div>\n<p>Dieser Frage widmete sich Dr. Niklas M\u00fcnchmeier, Head of Medical Affairs DACH bei Ipsen Pharma, bei STUDIEN WIRKEN 2026: <strong>Vielfalt. Zugang. Machbarkeit.<\/strong> Anhand der FIREFLY-1-Studie zu einem seltenen Hirntumor bei Kindern und Jugendlichen zeigte er, welche besonderen Anforderungen klinische Forschung in kleinen Patientenpopulationen stellt. Dazu geh\u00f6ren sorgf\u00e4ltig angepasste Studiendesigns, verl\u00e4ssliche Untersuchungsmethoden und internationale Zusammenarbeit.<\/p>\n<p>Dabei machte er deutlich: Entscheidend ist nicht allein die Gr\u00f6\u00dfe einer Studie, sondern welchen Erkenntnisgewinn sie erm\u00f6glicht. Langzeitbeobachtungen, Register und weitere Studien k\u00f6nnen dabei helfen, das Gesamtbild einer Erkrankung Schritt f\u00fcr Schritt zu vervollst\u00e4ndigen.<\/p>\n<p>F\u00fcr Dr. Niklas M\u00fcnchmeier steht dabei die Verantwortung gegen\u00fcber den Betroffenen im Mittelpunkt: Auch Menschen mit Seltenen Erkrankungen ben\u00f6tigen wirksame Behandlungsm\u00f6glichkeiten und Forschung, die neue Perspektiven er\u00f6ffnet.<\/p>\n<\/div>\n                <\/div>\n\n                <!-- If button is enabled then it's visible -->\n                                        <div class=\"btn-txt\">\n                            <a \n                                aria-label=\"\" \n                                class=\"btn-link section-btn cta-visible\"  \n                                role=\"link\"\n                                href=\"https:\/\/www.studien-wirken.de\/seltene-erkrankungen\/\" target=\"_blank\">\n                                Mehr zur Beteiligung von Dr. Niklas M\u00fcnchmeier bei STUDIEN WIRKEN                            <\/a>\n                        <\/div>\n                \n            <\/div>\n        <\/div>\n    <\/section>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":33,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_hide_featured_image":false,"_jetpack_featured_image_duplicate_dismissed":0,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[1,29,30],"tags":[],"class_list":["post-3258","post","type-post","status-publish","format-standard","hentry","category-allgemein","category-onkologie","category-seltene-erkrankungen","entry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>\u201eWir brauchen auch bei 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