{"id":30711,"date":"2023-05-31T12:15:07","date_gmt":"2023-05-31T10:15:07","guid":{"rendered":"https:\/\/www.ipsen.com\/?p=30711"},"modified":"2023-06-05T06:43:00","modified_gmt":"2023-06-05T06:43:00","slug":"collette-trouver-une-communaute-a-travers-la-cbp","status":"publish","type":"post","link":"https:\/\/www.ipsen.com\/fr\/actualites\/rare-diseases-fr\/collette-trouver-une-communaute-a-travers-la-cbp\/","title":{"rendered":"Collette : trouver une communaut\u00e9 \u00e0 travers la CBP"},"content":{"rendered":"\n

Collette a pass\u00e9 pr\u00e8s de 20 ans \u00e0 faire des allers-retours entre diff\u00e9rents m\u00e9decins et traitements, avant qu\u2019un diagnostic de cholangite biliaire primitive (CBP) soit \u00e9tabli, dans sa trentaine.<\/p>\n\n\n\n

\u00ab \u00c0 l’\u00e9poque, il n’y avait pas de traitement, il n’y avait rien \u00bb, dit-elle. \u00ab On m’a dit qu’il me restait cinq \u00e0 sept ans \u00e0 vivre ou qu’il y avait l’option d’une greffe de foie \u00bb.<\/p>\n\n\n\n

Face au manque d’informations, elle a d\u00e9cid\u00e9 de publier une annonce dans un journal national pour savoir si d’autres personnes vivaient avec la CBP. Elle a \u00e9t\u00e9 inond\u00e9e de r\u00e9ponses de personnes souffrant personnellement de la maladie ou avec des proches atteints.<\/p>\n\n\n\n

D\u00e9termin\u00e9e \u00e0 partager les connaissances, elle a cr\u00e9\u00e9 la Fondation CBP, dont la mission est d’apporter soutien et informations aux personnes touch\u00e9es par la CBP.<\/p>\n\n\n\n

\u00ab Savoir que ma situation a aid\u00e9 d’autres personnes dans leur parcours est tr\u00e8s pr\u00e9cieux pour moi \u00bb, dit-elle. \u00ab Et gr\u00e2ce au traitement, je peux maintenant vivre ma vie \u00bb.<\/p>\n","protected":false},"excerpt":{"rendered":"

Collette a pass\u00e9 pr\u00e8s de 20 ans \u00e0 faire des allers-retours entre diff\u00e9rents m\u00e9decins et traitements, avant qu\u2019un diagnostic de<\/p>\n","protected":false},"author":11,"featured_media":30757,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[1192],"tags":[],"class_list":["post-30711","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-rare-diseases-fr","entry"],"acf":[],"yoast_head":"\nCollette : trouver une communaut\u00e9 \u00e0 travers la CBP - Global<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.ipsen.com\/fr\/actualites\/rare-diseases-fr\/collette-trouver-une-communaute-a-travers-la-cbp\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Collette : trouver une communaut\u00e9 \u00e0 travers la CBP - 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