{"id":114034,"date":"2026-10-07T09:00:00","date_gmt":"2026-10-07T07:00:00","guid":{"rendered":"https:\/\/www.ipsen.com\/?p=114034"},"modified":"2026-10-05T14:22:44","modified_gmt":"2026-10-05T12:22:44","slug":"un-lien-avec-le-terrain-comment-les-donnees-en-vie-reelle-eclairent-la-prise-en-charge-des-maladies-rares","status":"publish","type":"post","link":"https:\/\/www.ipsen.com\/fr\/actualites\/science-2\/un-lien-avec-le-terrain-comment-les-donnees-en-vie-reelle-eclairent-la-prise-en-charge-des-maladies-rares\/","title":{"rendered":"Un lien avec le terrain : comment les donn\u00e9es en vie r\u00e9elle \u00e9clairent la prise en charge des maladies rares\u00a0"},"content":{"rendered":"<p class=\"heading-para wp-block-paragraph\">\u00ab\u202fNous essayons d\u2019identifier et de comprendre comment mieux soutenir les patients en dehors du cadre des essais cliniques.\u202f\u00bb\u00a0<\/p>\n\n<p class=\"heading-para wp-block-paragraph\">En tant que Medical Advisor terrain en maladies rares, Antonios Letis \u00e9volue \u00e0 l\u2019interface entre donn\u00e9es, m\u00e9decins et patients. Son p\u00e9rim\u00e8tre comprend notamment les maladies cholestatiques telles que la PBC \u2014 des domaines o\u00f9 l\u2019innovation a profond\u00e9ment transform\u00e9 les possibilit\u00e9s.\u00a0<\/p>\n\n<p class=\"heading-para wp-block-paragraph\">\u00ab\u202fIl y a quelques ann\u00e9es, il n\u2019existait pas de traitements pour certaines maladies rares. Aujourd\u2019hui, nous pouvons informer les m\u00e9decins sur les innovations qu\u2019Ipsen d\u00e9veloppe pour r\u00e9pondre \u00e0 ces maladies.\u202f\u00bb\u00a0<\/p>\n\n<p class=\"heading-para wp-block-paragraph\">Son r\u00f4le est centr\u00e9 sur les donn\u00e9es en vie r\u00e9elle. \u00ab\u202fIl s\u2019agit des patients que les m\u00e9decins voient mais qui ne participent pas aux essais cliniques\u202f\u00bb, explique-t-il. \u00ab\u202fLeur parcours est diff\u00e9rent.\u202f\u00bb\u00a0<\/p>\n\n<p class=\"heading-para wp-block-paragraph\">Il consacre la majeure partie de son temps \u00e0 combler l\u2019\u00e9cart entre les m\u00e9decins et les donn\u00e9es, en interagissant directement avec eux. Ces \u00e9changes contribuent \u00e0 la production de posters m\u00e9dicaux, de pr\u00e9sentations en congr\u00e8s et au dialogue scientifique global. \u00ab\u202fCe ne sont pas de simples supports pour de petites conf\u00e9rences\u202f\u00bb, pr\u00e9cise-t-il. \u00ab\u202fCe sont des \u00e9v\u00e9nements majeurs avec des scientifiques de haut niveau et un fort impact. Chacun contribue \u00e0 un m\u00eame objectif\u202f: am\u00e9liorer la vie des patients.\u202f\u00bb\u00a0<\/p>\n\n<p class=\"heading-para wp-block-paragraph\">Antonios consid\u00e8re que son parcours acad\u00e9mique l\u2019a pr\u00e9par\u00e9 \u00e0 ce r\u00f4le. \u00ab\u202fJe suis pharmacien, avec une formation acad\u00e9mique, et j\u2019ai publi\u00e9 des articles. Mais aujourd\u2019hui, tout cela a un impact\u202f\u00bb, explique-t-il. \u00ab\u202fVous communiquez les donn\u00e9es aux m\u00e9decins sur nos recherches, sur l\u2019innovation, sur les options disponibles. Le patient est au centre.\u202f\u00bb\u00a0<\/p>\n\n<p class=\"heading-para wp-block-paragraph\">Il ne dissocie pas la science de l\u2019exp\u00e9rience. \u00ab\u202fOn ne se contente pas de lire des donn\u00e9es dans un livre. On est en phase avec ce qui se passe aujourd\u2019hui\u202f\u00bb, affirme-t-il. \u00ab\u202fJe vois des patients heureux d\u2019utiliser nos traitements et qui n\u2019ont plus de prurit ni d\u2019autres sympt\u00f4mes.\u202f\u00bb\u00a0<\/p>\n\n<p class=\"heading-para wp-block-paragraph\">Sa vision reste ancr\u00e9e dans l\u2019espoir. \u00ab\u202fIl y a toujours de l\u2019espoir\u202f\u00bb, conclut-il. \u00ab\u202fEt il y a des personnes qui travaillent pour leur offrir une meilleure vie.\u202f\u00bb Pour Antonios, tout commence par \u00e9couter, analyser et partager, en reliant en permanence les donn\u00e9es \u00e0 la prise en charge des patients.\u00a0<\/p>","protected":false},"excerpt":{"rendered":"<p>\u00ab\u202fNous essayons d\u2019identifier et de comprendre comment mieux soutenir les patients en dehors du cadre des essais cliniques.\u202f\u00bb\u00a0 En tant<\/p>\n","protected":false},"author":11,"featured_media":114032,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[81827],"tags":[],"class_list":["post-114034","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-science-2","entry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Un lien avec le terrain : comment les donn\u00e9es en vie r\u00e9elle \u00e9clairent la prise en charge des maladies rares\u00a0 - Global<\/title>\n<meta name=\"description\" content=\"En tant que Medical Advisor terrain en maladies rares, Antonios Letis \u00e9volue \u00e0 l\u2019interface entre donn\u00e9es, m\u00e9decins et patients. 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