Ipsen, we are determined to show our commitment to patients with rare diseases including acromegaly, fibrodysplasia ossificans progressiva (FOP), neuroendocrine tumors (NETs), severe primary IGF-1 deficiency (SPIGFD) and more.
This Rare Disease Day, which takes place on Saturday, 29 February, we are asking people to take a closer look at rare diseases – more specifically, the impact of rare diseases as a whole. We worked with rare disease patients to create bespoke portraits from stylized microscopic images of rare disease, highlighting our commitment to rare disease patients and bringing scientific advances to them.
At Ipsen, we are driven to develop and enable timely access to innovative therapies and provide solutions for people living with debilitating and / or life-threatening conditions; working toward our goal of leaving no patient behind.
Building awareness of rare diseases is so important, as one in 20 people will live with a rare disease at some point in their life. Despite this, there is no known cure for most rare diseases, and many go undiagnosed. Rare Disease Day increases awareness, understanding and general knowledge around rare diseases, encouraging researchers and decision makers to address the needs of those living with a rare disease.
To showcase our ongoing passion and commitment to this therapeutic area, we had a Rare Disease Day takeover on our Ipsen webpage and our corporate social media channels; using our reach to further drive awareness of this cause. To learn more about Rare Disease Day 2020, visit EURODIS’ website here.